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Filling Out The DAA

Please read carefully through the first 5 pages of the Data Access Agreement (DAA) which consist of Terms and Conditions that you and your institution must agree to in order to access any data on St. Jude Cloud.

Next, ensure that you have correctly filled out the 5 required sections of the DAA (Note that there are 2 additional required sections if you intend to download data):

  1. Page 5 The Data Access Unit(s) you are applying for must be marked.

    • Tip: The DAU(s) associated to the data you requested are listed in the section Controlled Access Data, above the Download Data Request Form button. This can be found on the third step of the data request process. This is a dynamic feature that allows the user to see exactly which Data Access Units (datasets) they are requesting data from.

  2. Page 6 Signature and information of the Principal Investigator.

    • This must be signed by a Principal Investigator or a faculty-level supervisor on the project.

  3. Page 7 Signature and information of all other applicants.

    • This should include any person(s) who will have access to this data. They are legally bound to protecting and handling the data properly.

  4. Page 8 Signature and information of Institutional or Administrative Authority.

    • This individual cannot be the same Principal Investigator that signed above, as this section is to provide a second-party authority of the institution to ensure that the institution will uphold the terms of this agreement.

  5. Page 10 Description of contemplated use of St. Jude data.

    • Here, describe your research question and it's biological significance. The Contemplated Use will be evaluated by the Data Access Committee(s) based on their own set of protocols.
    • Please contact us if you have any questions regarding the protocols of the approval process.

Data Download Permission

Additionally, if and only if you would like to download the data, you will also need to include the following:

  • Page 5 The applicant's initials on the line below the checkboxes for DAU(s).

  • Page 9 Signature and information of the Information Technology Director or Chief Information Security Officer.

Uploading A Revised DAA

If your DAA is incomplete (for example you missed a required signature or neglected to check the box next to a dataset for which you requested data), you will be contacted by a member of the St. Jude Cloud team. Once you have made the required edits, you can reupload a revised DAA through the Manage Data page by clicking on the Add a Form button.

Frequently Asked Questions

Q. Why do I need to sign the DAA?

A. Although the DAA serves many purposes, the terms included in the data access agreement are ultimately in place to protect our patients. We take patient security very seriously, and we require that requesters are committed to protecting that privacy to the fullest extent.

Q. Where can I find the latest version of the DAA?

A. We keep our site up to date with the latest version on the Data Access Agreement for you to download, or you can download a copy here.

Q. Where do I submit the DAA??

A. You can submit your Data Access Agreement in the drag and drop box on the last step of submitting your data request.